Friday, June 28, 2013

one month post-transplant

We have come a long way in the last month: 

James is no longer on ECMO.

James in only on the ventilator at night. He uses a tracheostomy mask at 30% oxygen for twelve hours during the day.

James is no longer on TPN. He is being fed completely through NG feeds without nausea or vomiting.

James is no longer fighting infections.

James' major organ systems are all functioning within normal ranges.

James no longer has serious fluid overload.

James' various tubes and catheters have all been removed, (and James should be free from an IV pole by the end of the day).

James is awake, alert, and oriented. He can communicate with the team, and advocate for himself. We can laugh and smile, and find joy in our time together. 

James can move between his bed and the chair with minimal support. He has become a lot more confident in his own strength and endurance.

James has been able to leave the ICU twice. He was outside for the first time in six months, and had a lovely afternoon in the atrium.

James and I can imagine a future together again. We have a sense of hope.

Why be an organ donor? Organ donation saves lives. We are so very grateful for another chance at life. There are not enough words of gratitude. We are forever indebted by the generosity and courage of an anonymous stranger.


  1. This update makes me so happy. :)

    I'm glad they are helping you two get out of the ICU -- just getting some sunshine can make such a difference.

  2. Bravo James ,this is all wonderful news. The whole world knew you would get through this. I am so happy for you and Adena. A few more months and you two can start to live the rest of your lives the way you have dreamed of. It has been a long hard road that you traveled,but look at the pay off. My thoughts and prayers still coming your way.Stay strong.xoxoDonna

  3. I haven't seen James since highschool but I'm happy to hear he's on the mend. Very lucky to have such a supportive girl in his life. best of luck in the coming weeks of recovery.!

  4. So happy to hear that James has become stronger and stronger as each day goes by.Try not to do to much to quickly! It will all come with time,I know you are probably tired of hearing that.Keep up the good work,love to you both June

  5. Yipee - supercalifragilisticexpialidocious!

  6. Excellent news! Keep on moving forward!