ICU

It was an impossibly long day.  

There were false assurances: We were told in the morning that the situation was not critical. 

There was miscommunication (and lack of communication): James' rapid progression did not allow for proper explanations to prepare James or set up outcome expectations. We were not told of the plan to intubate within the hour.

There was one crisis following another. The discovery of an infection by CT scan was followed by a bronchoscopy to determine the type of an infection. He could not recover his breath from the procedure. An arterial blood gas found increasing carbon dioxide in James' lungs. James progressed from bipap support to intubation on a ventilator within the span of an hour. There was no time to process the change.

James has a serious infection. The type and extent of infection is still not known. He is being treated with broad spectrum antibiotics and anti-fungal medication for now. He is sedated to allow his body the rest that it desperately needs (and deserves).

We had been advocating for days. We knew something was seriously wrong. We didn't feel heard. It took a life threatening crisis. At least, James is now comfortable. He does not need to fight for each and every breath.

James could no longer breathe on his own. James can no longer breathe on his own.

I have not been able to sleep. It will be another long day.

I am forever grateful for all your continuous love and support. We really appreciate your prayers. Thank you, dear friends. 

love, love, and more love.