Thursday, October 18, 2012

short update before bed

We have good news and difficult news. The hard news is that James' FEV1 is down to 0.66 litres, or about 15% lung function. That being said, James and I are determined to keep fighting. The good news is that James' re-transplant assessment discussion has been moved forward to next Thursday (rather than in two to three weeks). This is because of his rapid decline and deterioration of quality of life. We are relieved that James' case is being made a priority for the Transplant Team. We are hopeful that James will qualify for re-transplant. The next phase would be waiting for an appropriate donor and a return to physiotherapy at the Transplant Gym. There is nothing that James and I can't do together. We just need to take it one day at a time.

James and I will be able to get a walker from a local charity-based organization on Monday. James will be able to use a walker on loan from Toronto General Hospital Transplant Gym for the weekend. We have also been able to locate a wheelchair with the help and generosity of a wonderful friend. An appointment has been booked to start the application process and interview for Wheel Trans. Wheel Trans is an accessible and direct local transportation system for individuals requiring mobility assistance. Unfortunately, Toronto does not have a very accessible public transportation system. Wheel Trans would allow James and I to travel throughout Toronto without the barriers of inaccessible streetcars and subway stations.

That's all for now. I'm heading to sleep. I will sleep well with gratitude for all of you. Thank you.

love. love. love.

No comments:

Post a Comment