Friday, October 5, 2012

pre-transplant assessment

James' case was discussed on Thursday for pre-transplant evaluation. He will start the assessment process during the week of October 15, 2012. This clinic is booked solid, but James and I will make ourselves available for all appointments, including last-minute cancellations. This does not guarantee that James will be listed for transplant, but it is a positive step forward. He remains a good candidate for transplant, but it is possible that James is stable enough to remain "inactive" on the list. That is, James would go through the process of assessment and evaluation, but he would not be actively waiting on the transplant list. This would ensure that all the necessary tests and information are in place for the point at which James' lung function declines further (or the risk of decline is deemed serious enough to require an active position on the transplant list).

We are both feeling a range of emotions. There is relief in knowing that James will be evaluated for transplant, but there is also a lot of sadness and fear that is compounded by the emotions of his first double-lung transplant. It is a lot to process, but James and I are ready to do this together. We just need to keep focused on living:

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