We are back on an upward trend, or in the least, back to a baseline of relative "stability". The cause of James' gastrointestinal distress was deemed to be another pseudo-blockage as a result of gastrointestinal dysmotility in combination with low lung function. It resolved with the use of anti-emetic medications, and without the need for more intrusive measures. There has been some discussion about a different type of feeding tube that would provide nourishment directly into his small bowel. This will not be necessary as long as James can remain asymptomatic.
We hope to find a balance with prophylactic anti-emetic medications to avoid further interventions. Of course, it is also important to consider side effects with long-term usage that could impact the function of James' heart. There is always something, but for now, James has had enough pokes and prods to last a lifetime (or several lifetimes).
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