James is the love of my life. He has cystic fibrosis and rapidly declined into active lung failure within days of our wedding. James got his second double lung transplant on May 29, 2013! We are documenting our moments and memories together as we search for hope in the dark and hold each other close for comfort and strength.
We wait. We wait. We wait. Nothing happens. We must find a way to keep our spirits up. These feel like dark days. We need some light in our lives.
Edit: James has another Pseudomonas infection. There is a collapse in his upper right lung, and pneumonia in his left lung. He will be treated with chest physiotherapy and another round of antibiotics. He is also positive for a CMV infection. The team has not made a decision about anti-viral treatment. This is all within the realm of expectation for extended ICU hospitalization. We hope that James' fatigue and malaise will start to improve with treatment.