Friday, March 1, 2013

our chance

Thank you for all your cards and messages of hope and support. We continue to read the mail (both virtual and otherwise) with gratitude for all your love. I wish I could respond to every comment and message. Please know that James and I really appreciate each and every one of you. Thank you for surrounding us with love and lifting our spirits.

James is doing remarkably well for someone on two types of life support. He is slowly being weaned from the ventilator to full reliance on ECMO. He is now able to spend a large portion of the day on a tracheostomy mask (only for oxygen support rather than complete pressure control or pressure support). He participates in physiotherapy from Monday to Friday, and continues to impress the team with increasing intervals on the treadmill. All of his vital signs are within normal ranges. We are at the ideal stage for transplant.

James' strength is also in his attitude. James has a positive resolve with a pure motivation towards the goal of achieving transplant. He endures through the discomforts of pain and anxiety with incredible hope. He fights as though there is a single discourse and possible outcome. James doesn't allow the fears to overwhelm his being. I wish I could emulate his drive for survival. I wish I could prevent the wanderings of my heart and mind to different futures. I wish I could imagine the impossible. I do everything to remain hopeful about our future. We may never grow old together, but I want a chance to be together in health. We deserve a chance. That is enough to push forward.

12 comments:

  1. Dear Adena and James,

    Every day I check your blog for an update and every day I hope to read lungs became available.
    I hope that day will come soon, hold on hold on hold on.

    Love and hugs
    Djuna from Holland

    ReplyDelete
    Replies
    1. We are holding on, and holding on, and holding on. We are so grateful for endless support from all over the world. Thank you, Djuna.

      Delete
  2. Dear James and Adena,
    We check your blog every day. Soon we will be in the city for Carl's testing and I would be so pleased to meet you Adena. Your love has given you both remarkable strength. You give us hope. It will happen, you deserve so much, I have hope and faith for all of us.
    Love
    Susan

    ReplyDelete
    Replies
    1. You are in our thoughts, Susan and Carl. We are with you on this journey. I look forward to meeting you, but I wish it were under better circumstances. There is an incredible transplant family at TGH. We all take care of each other. You are in loving hands. xoxo. Thank you for your continuous support.

      Delete
  3. thats great news 5 minutes on the treadmill we are still sending lots of prayers to the big guy asking him to send james some new lungs soon

    ReplyDelete
    Replies
    1. Thank you for helping is along our journey! We really appreciate your support and encouragement!

      Delete
  4. I always thought James was an inspiration ,but after all he has been through ,and now he is doing the treadmill. What a trooper.He is like that little bunny that keeps going and going and going.I prayer your lungs come very very soon.You have worked hard enough for them.
    Adena I hope you are getting a little sleep here and there. Prayers for you both.Stay strong xoxoxoxDonna

    ReplyDelete
    Replies
    1. Sleep is hard, but I do my best, because I know that to take care of James, I must take care of myself. Thank you for your continuous support, Donna.

      Delete
  5. Peace to your heart Adena; gentle soothing winds to calm your brain; and may your minds eye see only the loving future awaiting you and James.
    Hugs

    ReplyDelete
    Replies
    1. Thank you, Pamela. I intend to collect those hugs in the near future, a loving future, of course.

      Delete
  6. Is it possible for James to have visitors? I would love to drive in from Kitchener, if I thought I could give James a hug. Prayers for you both, Adena. Love, Betty

    ReplyDelete
    Replies
    1. O, Betty, that is very sweet! I will give James a hug from you! Visiting in the ICU is restricted to immediate family only. Thank you for your prayers!

      Delete