James is the love of my life. He has cystic fibrosis and rapidly declined into active lung failure within days of our wedding. James got his second double lung transplant on May 29, 2013! We are documenting our moments and memories together as we search for hope in the dark and hold each other close for comfort and strength.
Sunday, March 31, 2013
ICU emotions
It feels impossible to articulate the experience of living in the ICU on life support. We are overwhelmed with emotions of anger and sadness. We are brought to tears on a daily basis. We hold each other close. We hold each other tight. The environment is sterile in all sense of the word. We breath the stale air and contemplate the next moment. Each moment seems to grow in length with the ever-slowing passage of time. We talk about the future. We imagine the best and worst of outcomes. We focus our attention on gratitude. It doesn't change the situation. What does change? What is within our control? There doesn't seem to be a lot of room for movement. We feel trapped. There is only anticipation. We wait for the phone call. There are no guarantees. We only want a chance.
Subscribe to:
Post Comments (Atom)
I know it must be diffcult but hang in there,you and James have so much going for you.Please Lord let James have his new lungs .Stay strong xoxoDonna
ReplyDeleteAdena, thank you for sharing so honestly all of your fears and joys, highs and lows. You and James are in my thoughts every day. Lots of love, Heidi
ReplyDeleteHugs of comfort, love, strength and rest to you both!
ReplyDeleteSending positive thoughts your way James!! Thinking of you every day. Xo Katie
ReplyDelete