Tuesday, July 16, 2013

discharge from hospital

We have wonderful words to write. Home is no longer an abstract concept of the distant future. James may be home by the end of the week.

There has been a slowing down, and with that, an awareness of a different form of exhaustion. It makes it difficult to write. We are both very emotional with the acknowledgement of memories of the last year in hospitals. It is impossible to process the grief of these last few months. There has been a significant trauma. We will both need time to heal, but in that, James and I look forward to be able to look back on these aches.

The challenge remains to regain weight in the face of on-going nausea and vomiting. James is no stranger to lack of appetite. The threat of force feeding always looms in the background with each gentle encouragement of "one more bite." This is all within the realm and realities of Cystic Fibrosis. These difficulties pale in comparison to the last six months. That perspective allows James to push through the discomforts. 

We held onto hope. It was always on the horizon.


  1. James must be making excellent progress! What a great blessing for you both too look forward to....to be going home together. We are thankful to you and continue to hold admiration for you as you share these moments of your lives,throughout this difficult journey. May you both be blessed abundantly as you look to the future. Take care.Ross

  2. Such wonderful news. I am so excited for you two! What a journeys it has been!

  3. I have been following your story, it is incredible how far you have both come and hope this continues for both of you.

  4. sooo happy to read that James will be going home shortly...you are such an inspiration to many and I hope he truly thrives in the comfort of home and your arms! Blessings!