It was a hard few months in the transplant and CF communities, but I suppose that is often the case with the passage of time, and in the cold and dark months. We enter the new year with relative health, but with heavy hearts for many of our dear friends. We have formed wonderful and invaluable friendships, but it is hard to witness the progression of the disease and the deterioration of health, especially, post-transplant after a period of renewed health. Transplant provides temporary hope, but it is not a cure. We know firsthand the exchange of one set of problems for another.
In December, James and I were reminded of his own vulnerability, and anxiously awaited the results of an emergency bronchoscopy. He had a consistent decrease in lung function that was large enough to be of concern, but for now, James is clear from infection and rejection, and those numbers appear to be returning to his baseline. James is stable.
We are beyond fortunate. We are beyond grateful. Time is more precious than ever before.
